Image Kristen's Life with Cerebral palsy

Image Kristen's Life with Cerebral palsy
Kristen & Linsey, The Two Best Friends

"Kristen with her Walker."

ABOUT ME -


My name is Kristen, I'm 32 years old and I was born with Cerebral palsy. My Cerebral palsy is mild and mostly in my legs. I can walk on my own but sometimes I use a walker to prevent me from falling. I also wear leg braces called Turbo-afos to help me walk better and to keep me from walking on my toes. I was born 3 months early and weighted 2 lbs & 1 oz. When I was 2 years old I was diagnosed, my family learned I had Cerebral palsy.

There are many different types of Cerebral palsy .

My Cerebral palsy is mild,my muscles are tight and stiff mostly in my legs. Having such tight/stiff leg muscles causes me to have bad balance and a hard time walking.



Kristen's Leg braces, "Turbo- afos".

The two of us, write this blog. Linsey, who sometime's gives her insight or outlook on what its like to have a friend me ("Kristen") with Cerebral Palsy or what it's like for her living life with Mosaic Down Syndrome and most importantly the two of us are trying to bring more Understanding / Awareness for Cerebral Palsy and other Disabilities by writing blog entry's each week, every two weeks or once a month. The two of us won't give up on Disability Awareness.

Wednesday, July 9, 2014

SUMMER IS FINALLY HERE!

Blog Entry # 165

Me, Linsey.
Hi Everyone,

Since Summer is finally here, my friend Kristen and I are on summer vacation once again. If you haven't guessed this is me (Linsey) blogging this time around. Every year Kristen and I go on a vacation sometime during the summer. For instance.. The first year of blogging Kristen and I went to a beach and zoo with my family in Oregon. Then the second year Kristen and I went to Disney World in Florida. This year, Kristen and I are spending the summer in Louisiana with Kristen's family. So far durning this vacation, Kristen and I have gone to see two movies in the theater the first movie was Maleficent and the second movie was Fault of our Stars, the two us LOVED both of the movies! Also, we have been to the mall and have been to a few birthday parties. There was a HUGE BIRTHDAY PARTY for Kristen's Grandmother, Kristen's Grandmother just celebrated her 78th birthday!!


Kristen.
Kristen and I went to the mall a few days ago, the two of us noticed something and the only reason why we notice is because We didn't bring Kristen's wheelchair to the mall with us, the wheelchair was at her aunts house. As the two of us walked in the mall, Kristen and I notice how far from the entrance of the mall to the information desk where they had the wheelchair rentals at. By the time Kristen walked with me to the information desk holding on to my arm, she was done and tired. Kristen ended up getting a wheelchair and the two of us went shopping at the mall. When Kristen and I got back to Kristen's aunts house, the two of us asked Kristen's aunt why the wheelchair rentals were so far away. Kristen's aunt was explaining to the two of us about the mall entrances and told us "it depends on what door you go into the mall" for example you can go into a store entrance or you can go into the mall entrance. If you go into the mall entrance you will see some where to rent/get a wheelchair nearby, if you go into a store entrance you have to walk through the store and it depends how far away you are from the mall entrance. So needless to say Kristen and I went into a store entrance that day and now will be more aware of when we go to a mall to bring Kristen's own wheelchair or to ask when the two of us decide to go to the mall in the south to be drop off at a mall entrance. 

Since it's so hot here in the south the two us have been swimming a lot, love to swim however little Miss Kristen is not a big fan of swimming. But on the 4th of July Kristen's sister and I got her to go into the pool finally, Kristen knows how to swim a little bit, her sister and I kept an eye on her in the pool. About 2 hours in the pool for Kristen and I, the two of us got a sunburnt a little on our shoulders! Two days of swimming in the pool for Kristen made her TIRED and SORE! But all of us had fun swimming in the pool.

Until Next Time, Linsey and Kristen :)

*To Find out more about my friend Linsey or I, Please take time to check out our Disability Awareness page on Facebook called: Kristen's Life with Cerebral palsy, page for blog
Kristen's Life with Cerebral palsy, page for blog



Wednesday, May 28, 2014

Ups and Downs

Blog Entry #164

Hi Everyone,
Me, Kristen.

I know that my friend Linsey and I normally post blog entry's every month. However last month had some ups and downs in it that's for sure, that's why there wasn't a blog entry posted in the month of April!

One morning I was playing with my little dog Jack and noticed his neck was swollen from there he started to not acting like himself, by sleeping a lot more than usual, his bark sounded different, so I took Jack to the vet. The vet had given,me some medicine to give my dog Jack to help with his sore throat and swollen neck, after a few days my dog Jack still was not feeling well, so back to the vet Jack and I went. This time the vet thought maybe getting his teeth cleaned might help Jack and get a closer look inside his neck to find out what's going on. When my dog Jack got his teeth clean, the vet ended up having to pulled one of his back teeth because the tooth was lose. After cleaning my dog Jack's teeth, the vet got sample of tissue from Jack neck and sent it the lab to find what's going on with my little dog Jack ! The next day the vet called and said "my dog Jack does Not have cancer!! I jumped for Joy on that one, I think Jack might have also!! However Jack does have a salivary gland problem and will most likely will have surgery in the near future to have the salivary gland removed. I'm not sure how Jack ended having a salivary gland problem in his neck, but he's back to being himself these days!!! 

In case this is your first time seeing and reading this blog, my dog Jack who is 8 years old has been blogged about before and does his part to show his support for Cerebral Palsy and Disability Awareness Month.

My little dog Jack.


"Dogs are not our whole life, but they make our lives whole." 
~ Roger Caras


To Find out more about my friend Linsey or I, Please take time to check out our Disability Awareness page on Facebook called: Kristen's Life with Cerebral palsy, page for blog
Kristen's Life with Cerebral palsy, page for blog
~ Until Next Time, Kristen & Linsey :)


Saturday, March 29, 2014

Moments of March!

Blog Entry #163

Hi Everyone,

Me, Linsey.
This is Linsey, Kristen asked me to blog this time around for the month of "March"! It's been a busy month so far, March always seems to be a busy month for Kristen and I because it just so happens to be Kristen's Birthday month, Cerebral Palsy Awareness month, National Cerebral Palsy Awareness Day on March 25th,World Down Syndrome Awareness Day on March 21st and so many other awareness's. My friend Kristen and I have always tried our best to bring awareness / understanding for Cerebral Palsy and other disabilities every week through our Facebook page. The two of us, chose not to make a YouTube video for or about Cerebral palsy Awareness this year instead we chose to make pictures of facts about Cerebral palsy for Awareness. Kristen and I posted the pictures on Facebook. We ended up getting lots of likes and shares on these pictures for Cerebral palsy Awareness this year on Facebook.


Kristen and I celebrated World Down Syndrome Day this year on March 21st "3-21". Most of you know on this blog that I was born with Mosaic Down Syndrome. There are some people that get miss diagnosed or don't get diagnosed with Mosaic Down Syndrome because it's an uncommon type of Down Syndrome. Mosaic Down Syndrome is a rare form of Down Syndrome it happens 2-4% of people with Down Syndrome, I was diagnosed around the age of 3 years old. I tried showing my support by wearing crazy socks on World Down Syndrome Day, I had fun showing them to the world.


Kristen with her 32nd
birthday cake.
"Kristen's Birthday is in March also", she got to do some pretty cool things on her 32nd birthday this year.
1)When Kristen woke up on her birthday, there were some of Kristen's favorite donuts waiting for her when she woke up.
2)The two of us went to the Casino to try out Kristen's luck so I gave her $5 extra dollars to add to her amount of money that she had with her and she won $20 off of the $5. Kristen was pretty proud of herself.
3)Kristen, loves to eat Mexican food once in a while, so I made a plan and took Kristen out for her Birthday dinner which was Mexican food!
4)Last but not least, Ice cream cake for dessert.






To Find out more about my friend Linsey or I, Please take time to check out our Disability Awareness page on Facebook called: Kristen's Life with Cerebral palsy, page for blog
Kristen's Life with Cerebral palsy, page for blog
- Until Next Time, Linsey & Kristen :)

Friday, February 28, 2014

It's been a while.

Blog Entry #162

Hi Everyone,
Me, Kristen.

It's been awhile since I have posted a new blog entry, my friend Linsey and I decided to take a month off (January) from blogging. Linsey and I have been blogging for 4 years now and we needed a small break to make another awesome year of blogging happen for more understanding and awareness for Cerebral palsy and Disability Awareness! One of the topics that Linsey and I have not really blogged about is "Acceptance or Independence". As a kid and as a teenager, it was little bit harder to be accepted because of the way I walked, but once people got a chance to know me everything seems to work out in school. Now days, I just what to be accepted for what I can do and can't do in life due to me having Cerebral palsy. I find myself wishing or wanting to be more independent like my sisters and brothers are.

My brothers and sisters all have there own lives, they all drive, all have jobs, some of my siblings have kids and some are in college!  I know some of you are reading this and thinking that: "I have done this and I have done that and I have a disability", but remember this is about someone else. I have come a long way as a kid, teenager and now being almost 32 years old with Cerebral palsy. I now have braces on my teeth, I have come a long way with that, I have been wearing braces on my teeth for 10 months so far!! I always have wanted to be independent just like everyone else in this world, but it's hard finding my own ways sometimes, because I still need help no matter what I do. I think no matter who you are, everyone needs help with something every once in a while in this world.



Linsey.
I thought it would be really awesome if my friend Linsey spelled out the word ACCEPTANCE down in a line. Taking the first letter in the word and find a meaning to go with every letter of the word "acceptance".




To Find out more about my friend Linsey or I, Please take time to check out our Disability Awareness page on Facebook called: Kristen's Life with Cerebral palsy, page for blog
Kristen's Life with Cerebral palsy, page for blog
- Until Next Time, Kristen & Linsey :)


Thursday, December 19, 2013

Blogging for a few years.

Blog Entry #161

Hi Everyone,

Me, Kristen.
This month (December), has been kinda of a big milestone for my best friend Linsey and I. As of December 1st, 2010 the two of us realized that we have blogged yet another full year for more understanding and awareness for Cerebral palsy and other disabilities along the way. My friend Linsey and I didn't even notice the date on the calender, until Linsey went to our Awareness page on Facebook and saw the date December 1st, 2010 was the start date of this blog "Kristen's Life with Cerebral palsy". Then I looked at Linsey and said "Yet, another year down of blogging for Awareness!" My friend Linsey and I don't even know if this blog is really bring any awareness or understanding to anybody, but the two of us will continue this blog no matter what! My Mom had suggested a while ago that Linsey and I should put our blog entry's into a book one day, I am pretty sure that's what two of us will do, ONE DAY!

My friend Linsey and I.
Also this month happens to be Linsey's 31st birthday! I am older just by a couple of months, so the two of us will be the same age only for a little while. My friend Linsey has had a hard time celebrating her birthday, because of  her birthday being so close to Christmas time. Every year, the two of us and our other friends always try to find something awesome to do for Linsey's Birthday. This year, Linsey said she wanted to "go out to dinner, go to a Nutcracker play where we live and eat cupcakes. That's exactly what Linsey and I did this "2013" year to celebrate Linsey's 31st birthday!

One person, Linsey and I "will never forget and will always be in our hearts."
A few days ago a friend and Special Olympic teammate passed away unexpectedly
She was an awesome person with a heart of gold and a smile that made you smile right back.
This person had Spina Bifida, and always seemed ready for any obstacle that came her way
In Special Olympics, she always cheered on her teammates and didn't matter win or lose.
She always said "if I had a better wheelchair that had a little bit of speed, she would be unstoppable!" Most importantly Linsey and I had admired her will to never give up no matter what!!! The first thing that comes to mind about this person is she was a friend and a Special Olympics Athlete with a heart of GOLD!

Since the holidays are coming up, Linsey and I made a Holiday YouTube video.



To Find out more about my friend Linsey or I, Please take time to check out our Disability Awareness page on Facebook called: Kristen's Life with Cerebral palsy, page for blog
Kristen's Life with Cerebral palsy, page for blog
- Until Next Time, Kristen :)


Saturday, November 16, 2013

Another Year of Bowling!

Blog Entry #160

Hi Everyone,
Last month (October) was Down Syndrome Awareness Month, my friend Linsey blogged about her living with Mosaic Down Syndrome in the last blog entry. I think Linsey did awesome, telling a little bit about her life story growing up!

Kristen using a Bowling
 ramp.
Since August, my friend Linsey and I have been practicing bowling in Special Olympics for the last four months. This past weekend Linsey and I went to a Bowling Tournament for Special Olympics and the two of us competed. I use a ramp while bowling and compete against people that use ramps while bowling also. My friend Linsey bowls either by herself or with a partner called "Doubles", however this year she choose not to bowl with a partner and bowl by herself. Linsey and I are okay bowlers, sometimes the two of us do good or even awesome, then we have our days of ohh wells.. Lol :)
Like I said "last weekend my friend Linsey and I competed in a Bowling Tournament for Special Olympics", it was the first time that my friend Linsey and I bowled against other teams that the two of us have never seen before. It seemed a little different and felt a little differently this year. I bowl two games and Linsey bowl two games right a long with everyone else in Special Olympics. Linsey ended up getting 2nd place (Silver metal) in bowling as for me, I ended up getting 4th place in ramp bowling. The one thing that I don't use in bowling is a walker because I use my arms to push the bowling ball in 10 frames in a bowling game. Most people when they are bowling, they seem to be using there arms and legs a lot! I however have mild Cerebral palsy and I have to wear leg braces but I make it up with all arms. By moving the ramp and lining it up just right, moving the bowling ball on top of the ramp to make sure it's lined up with the bowling pins, with a good push with out trying to move the bowling ramp I just stand there and hope the bowling ball HITS THE BOWLING PINS!

Until Next Time, Kristen :)


Friday, October 18, 2013

Down Syndrome Awareness & Linsey.

Blog Entry #159

Hi Everyone,

My friend Linsey, is going to write this weeks blog entry and give her insights on what it is like living with Mosaic Down Syndrome.
As many of you know, October is Down Syndrome Awareness Month, I would share my story with everyone about my disability. I was born with Mosaic Down Syndrome, which is a rare form of Down Syndrome. When I was growing up, I had no idea that I was different or what was different about me. I kind of knew that I in Special Ed classes because I didn't know how to do some things in class. I was put in special classes for part of the day all through out school. The different subjects that I needed help with in school was: reading, spelling, speech and math.

When I was diagnosed with Mosaic Down Syndrome I was about 3 years old and about that time I had open heart surgery to repair my heart because it had a little hole (pen size hole) in my heart. I have not had any more trouble with my heart since my surgery and I even had a check up about 5 years ago and was told that there is nothing wrong. Having MDS (Mosaic Down Syndrome) you sometimes can tell that someone has Mosaic Down Syndrome and sometimes you can't tell that someone has Mosaic Down Syndrome because: 1) Mosaic Down Syndrome is a rare disability, 2) there looks are very mild to someone with Down Syndrome and 3) there are a lot of people who don't get diagnosed Mosaic Down Syndrome.
There are three main types of Down Syndrome:
* Down Syndrome - Trisomy 21
* Translocation Down Syndrome
* Mosaic Down Syndrome


I still don't know very much about my own disability Mosaic Down Syndrome but I know quit bit about Down Syndrome itself, I do know some people where I live with Down Syndrome. I am learning about my disability a little bit more everyday through this blog and through mine and Kristen's page on Facebook. Kristen and I are bring more awareness & understanding to my disability and other disabilities also. I have always had a hard time excepting that I'm a little different but a little bit special in a different way, that is what I have learned so far. I often forget some times that there are some things that I can do and there is some things that I need help. I have a hard time with my speech because I also have a lisp, hearing loss in my right ear and my speech has been affected since I was a little kid. I am working on my speech still to this day! I am a daughter, granddaughter, niece, auntie, cousin, friend, doggy mom, Special Olympian and I AM SOMEONE WITH A DISABILITY BUT MOST OF ALL I HAVE MOSAIC DOWN SYNDROME AND I HAVE AN EXTRA CHROMOSOME ! :)

To Find out more about my friend Linsey or I, Please take time to check out our Disability Awareness page on Facebook called: Kristen's Life with Cerebral palsy, page for blog
Kristen's Life with Cerebral palsy, page for blog
- Until Next Time, Linsey and Kristen :)